69th Heidelberg Grand Rounds - Responsible Use of Clinical Data for Research Purposes

Europe/Berlin
Description

 

This year, the NCT Heidelberg is again organizing several Heidelberg Grand Rounds. The format is aimed at clinicians as well as  researchers and provides a platform for effective scientific exchange. Recognized experts will present the latest clinical and research results in selected oncological fields.

We look forward to welcoming you to the virtual conference room.  

Chairs: 

Prof. Dr. Eva Winkler
Prof. Dr. Kai Cornelius
Dr. Christoph Schickhardt

 

Participation is free of charge. 


Thanks to our sponsors: 

MSD Sharp & Dohme GmbH - 750 €
Roche Pharma AG - 500 €

 

The NCT Heidelberg is a joint institution of the German Cancer Research Center (DKFZ), Heidelberg University Hospital (UKHD) and German Cancer Aid (DKH).

Organizer: Heidelberg University Hospital (UKHD)
Event language: English

Note: If the registration form does not open, please switch browsers once and try again.

    • 16:00 16:45
      Sharing healthcare data across borders: Connecting national initiatives through governance and standards 45m

      CV
      Adrian Thorogood (B.A. & Sc., B.C.L. & LL.B., LL.M.) is a lawyer and Research & Deve lopment Specialist in the Bio informatics Core, Luxem bourg Centre for Systems Biomedicine, University of Luxembourg. He works with the European 1+ Million Ge nomes Project and other infrastructure projects to address ethical and legal issues that arise when sharing genomic and health-related data cross-bor der and internationally. Previously, Adrian was a le gal researcher at the Centre of Genomics and Policy at McGill University in Canada, and the Regulatory and Ethics Manager of the Global Alliance for Ge nomics and Health (GA4GH), a public-private con sortium promoting standards to enable responsible genomic data exchange.

      TALK
      International data sharing can accelerate scientific advancement and improve healthcare for all, but raises concerns over incentives, privacy, and trust. Strategies to alleviate these concerns include codes of conduct that align legal rules, and network designs that preserve local independence, control, and accountability. Ultimately, however, our international aspirations can only be achieved if they can be embedded in local values, relationships, and rules.

      Speaker: Adrian Thorogood (Bioinformatics Core and ELIXIR-LU, Luxembourg Centre for Systems Biomedicine, University of Luxembourg)
    • 16:45 17:05
      Expert opinions on the potential and risks of secondary use of clinical data for biomedical research 20m

      CV
      Anja Köngeter is a research associate in the Section for Translational Medical Ethics at the National Center for Tumor Diseases Heidelberg. She conducts qualitative and quantitative empirical research as a member of the DFG-funded research project LinCDat (“Learning from Clinical Data”). Her main research interest is the analysis of different stakeholder attitudes towards the secondary use of clinical data.
      Anja Köngeter graduated with an MA in Sociology from Heidelberg University in 2014 specialising in Sociology of Health. She then gained experience in Science and Technology Studies at the Austrian Institute of Technology in Vienna, where she worked in international research projects focusing on stakeholder involvement, social innovation, and participatory methods. Additionally, she worked in consultancy and policy advice for clients like the European Commission.

      TALK
      Anja Köngeter presents empirical insights into the views of experts on the potential and risks of secondary use of clinical data for biomedical research in Germany. She conducted a qualitative interview study with researchers, health care providers, medical computer scientists as well as representatives of regulating institutions, patient advocacy and politics. The findings point to issues that are critical to implementing planned secondary use of clinical data in an ethical manner.

      Speaker: Anja Köngeter (National Center for Tumor Diseases (NCT) Heidelberg)
    • 17:05 17:25
      To share or not to share? Moral responsibilities of patients and physicians to support secondary use of clinical data for biomedical research 20m

      CV
      Martin Jungkunz is an ethicist in the Section for Translational Medical Ethics at the National Center for Tumor Diseases Heidelberg. He is studying the ethical implications of the secondary use of clinical data for research as part of the DFG-funded research project "Learning from Clinical Data". After earning a magister artium degree in sociology, philosophy and psychology at the University of Heidelberg, Martin completed his doctorate at the Department of Human Rights and Human Rights Policy at the University of Erlangen-Nuremberg. Before joining the NCT, Martin worked as a data manager in psychosomatic research at the Central Institute of Mental Health in Mannheim.

      TALK
      Martin will discuss the moral responsibilities of physicians and patients regarding the use of clinical data for research. Particular attention will be paid to whether patients and physicians are morally obliged to support secondary use of clinical data, whether by providing their own data on the part of patients or by participating in data collection on the part of physicians.

      Speaker: Dr Martin Jungkunz (National Center for Tumor Diseases (NCT) Heidelberg)
    • 17:45 18:00
      Concluding Discussions (with all speakers) 15m